Nursing Care of Children and Young People with Long-Term Conditions.

Intro -- Table of Contents -- Dedication Page -- Title Page -- Copyright Page -- Contributors -- Introduction -- CHAPTER 1: The Definition and Aetiology of Long‐Term Conditions -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Genetic knowledge -- The need for genetic knowledge -- The ethical, legal and social implications in the screening, testing and recording of genetic information -- The determinants of genetic disease -- Chromosomal abnormalities -- Chromosomal nomenclature -- Single gene (Mendelian) disorders -- Autosomal recessive inheritance -- Autosomal dominant inheritance -- X‐linked recessive inheritance -- X‐linked dominant inheritance -- Inherited variations -- Antenatal period -- The neonatal period -- Post‐neonatal period -- Adolescent period -- Conclusion -- Useful websites -- References -- CHAPTER 2: Context of Care and Service Delivery -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Context of change -- Political influences -- Economic influences -- Social influences -- New models of service delivery -- Modernising workforce -- Increasing patient expectations and engagement -- Locally based commissioning -- Staffing implications -- Staff education and competence -- Meeting parental needs -- Innovative practices - new roles -- Telemedicine -- Key worker role -- Mental health issues -- Multiagency working -- Multidisciplinary team (MDT)/Interprofessional working (IPW) -- Nursing implications, challenges and opportunities in MDT/IPW working -- Conclusion -- Acknowledgement -- Useful websites -- References -- CHAPTER 3: Impact upon the Child and Parents -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Theories of grief, loss and change -- Initial impact -- Type 1 diabetes -- Impact on parents -- Impact on the child/young person with a long‐term illness.

Continuing care -- Coping, adaptation and change -- Theories of stress and coping -- Coping strategies -- Normalisation -- Conclusion -- Acknowledgement -- Useful websites -- References -- CHAPTER 4: Impact On Siblings -- Introduction -- Aim of the chapter -- Intended learning outcomes -- The sibling relationship -- Sibling identity -- Sibling boundaries -- Sibling interaction -- Parental influence on the sibling relationship -- The impact of a long‐term condition on the sibling -- A new diagnosis -- Changes in family life for the sibling -- Emotional labour -- Sibling empathy and maturity -- Siblings as carers -- Young carers and carers' assessment -- Recognising the unmet needs of siblings -- Conclusion -- Useful websites -- References -- CHAPTER 5: A Holistic Approach to Meeting Physical, Social and Psychological Needs -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Prevalence of eczema -- Nursing considerations -- Presentation of eczema -- Treatment of eczema with emollients -- Topical emollients -- Safety -- Effects of the itch scratch cycle -- Family stress and coping -- Assessment and immediate intervention -- Current care management plan -- Wet wraps -- Topical steroids -- Pain assessment -- Antihistamines -- Play and distraction -- Bullying -- Spirituality -- Traditional, complementary and alternative medicine -- Health promotion -- Conclusion -- Useful websites -- Recommended reading -- References -- CHAPTER 6: Empowering Children, Young People and their Families -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Health promotion -- Empowerment -- Approaches to health promotion -- Parental smoking -- Obesity -- Non‐compliance -- Steroids -- Restrictive physical interventions and therapeutic holding -- Conclusion -- Useful websites -- References -- CHAPTER 7: Ethical Issues -- Introduction.

Aim of the chapter -- Intended learning outcomes -- Why study ethics? -- A definition of ethics -- Introduction to ethical theories -- Theory of consequentialism -- Utilitarianism -- Act utilitarianism -- Rule utilitarianism -- Theory of deontology -- Ethical principles -- Principle of autonomy -- Ethical principle of beneficence -- Issues -- Ethical principle of non‐maleficence -- Ethical principle of justice -- A nursing ethic -- Definition of an ethical dilemma -- Ethical decision‐making -- A suggested model for ethics in practice/decision‐making -- Conclusion -- Acknowledgement -- Useful websites -- Recommended reading -- References -- CHAPTER 8: Children and Young People's Continuing Care -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Continuing care needs and integrated children services -- Transition to home care -- Blended diets -- Children and young people's continuing care -- Identifying an appropriate care package -- Key worker role/care coordinator -- Community children's nursing services -- Provision of equipment for home care -- Carers' assessments -- The need for respite or short break provision -- Home adaptations -- Education and support at school -- Support for families -- Conclusion -- Useful websites -- References -- CHAPTER 9: Acute Emergencies -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Acute emergencies -- Aetiology -- Environmental factors -- Pathophysiology -- Presentation -- Prognosis -- Treatment -- Administration of chemotherapy -- Central venous access devices -- Sepsis -- Children's critical care -- Family‐focused care -- Multidisciplinary working across different organisations -- Conclusion -- Useful websites -- References -- CHAPTER 10: Adolescence -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Existing knowledge.

Why nurses need knowledge of adolescence -- Brief overview of adolescent development -- Understanding long‐term conditions from a young person's perspective -- Chronic kidney disease -- Communicating with young people -- Communication issues for Thomas -- Peer groups -- The impact of having a long‐term condition on growth and development -- Delayed growth and puberty -- Inconsistencies between physical and psychological development -- Body image and self‐esteem -- Compliance and non‐compliance, concordance and co‐production -- The social aspects of having a long‐term condition -- Young people, long‐term conditions and school -- Bullying -- The hospitalised adolescent -- Issues for young people in hospital -- Specialised adolescent units -- Service delivery and adolescent health -- Promoting excellence -- The role of the nurse -- Conclusion -- Acknowledgement -- Useful websites -- Recommended reading -- References -- CHAPTER 11: Transitional Care -- Introduction -- Aim of the chapter -- Intended learning outcomes -- Overview of cystic fibrosis -- Further complications -- Genotype -- Management -- Adolescents with a long‐term condition -- Transitional care -- The philosophy of transitional care -- Models of transition -- Issues regarding transition for adolescents -- Gaining autonomy -- Managing a long‐term condition -- Support and decision‐making -- The role of the nurse -- Promoting the paradigm shift -- The principles of successful transitional care -- Conclusion -- Useful websites -- Recommended reading -- References -- Index -- End User License Agreement.

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Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2024. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.