Surgically Shaping Children : Technology, Ethics, and the Pursuit of Normality.
- 1st ed.
- 1 online resource (305 pages)
Intro -- Contents -- List of Contributors -- Acknowledgments -- Introduction: Thinking about Surgically Shaping Children -- PART I: PERSONAL NARRATIVES ABOUT APPEARANCE-NORMALIZING SURGERY -- 1 Twisted Lies: My Journey in an Imperfect Body -- 2 Do I Make You Uncomfortable? Reflections on Using Surgery to Reduce the Distress of Others -- 3 My Shoe Size Stayed the Same: Maintaining a Positive Sense of Identity with Achondroplasia and Limb-Lengthening Surgeries -- 4 The Seduction of the Surgical Fix -- PART II: TECHNOLOGY AND THE PURSUIT OF NORMALITY -- 5 Concepts of Technology and Their Role in Moral Reflection -- 6 Emily's Scars: Surgical Shapings, Technoluxe, and Bioethics -- 7 Thoughts on the Desire for Normality -- PART III: THE SURGICAL CONTEXT -- 8 To Cut or Not to Cut? A Surgeon's Perspective on Surgically Shaping Children -- 9 What's Special about the Surgical Context? -- 10 Are We Helping Children? Outcome Assessments in Craniofacial Care -- PART IV: CHILDREN AND PARENTS DECIDING ABOUT APPEARANCE-NORMALIZING SURGERY -- 11 Who Should Decide and How? -- 12 The Power of Parents and the Agency of Children -- 13 "In Their Best Interests": Parents' Experience of Atypical Genitalia -- 14 Toward Truly Informed Decisions about Appearance-Normalizing Surgeries -- 15 Appearance-Altering Surgery, Children's Sense of Self, and Parental Love -- 16 What to Expect when You Have the Child You Weren't Expecting -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- Q -- R -- S -- T -- U -- V -- W -- Y.
Patrick, Nichola Rumsey, Emily Sullivan Sanford, Tari D. Topolski.
9780801889165
Children-Surgery-Moral and ethical aspects. Abnormalities, Human-Moral and ethical aspects. Surgery, Plastic-Moral and ethical aspects. Children-Surgery-Decision making. Decision making in children.