TY - BOOK AU - Green,Sara E. AU - Loseke,Donileen R. TI - New Narratives of Disability: Constructions, Clashes, and Controversies T2 - Research in Social Science and Disability Series SN - 9781839091452 AV - HV1551-3024 U1 - 362.4 PY - 2019/// CY - Bingley PB - Emerald Publishing Limited KW - Sociology of disability-Research KW - Electronic books N1 - Front Cover -- New Narratives of Disability: Constructions, Clashes, and Controversies -- Copyright Page -- Contents -- List of Tables -- About the Contributors -- Introduction Exploring Narrative as a Social Science Framework on Disability and Disabled People -- Notes -- Acknowledgments -- References -- Part I. Cultural Stories of Disability and Individual Lives -- Chapter 1 Reframing the Story of Helen Keller and Anne Sullivan: Resisting (Dis)ability Stereotypes through an Analysis of ... -- Introduction -- Deaf, Deaf-Blind, and Identities -- Narratives, (Dis)ability, and Interdependence -- Disability Studies Scholarship on Helen Keller -- Methodology -- Findings -- The Story of the Water Pump Moment: A One-sided Relationship of Helen and Anne -- Sullivan as "Miracle Worker" -- "That Day at the Water Pump Changed Helen's Life" -- Helen as "Miracle Child" -- "The Big Storm" -- The Complexities of Resistance -- Being "Trapped" by Her Disabilities -- Helen as a "Modern-day Saint" -- Interdependence - "You've Given Me a Marvelous Life" -- Conclusion -- Acknowledgments -- References -- Chapter 2 "It's Not That Way You Know, She Has a Good Future": Women's Experiences of Disability and Community-based Rehabi... -- Introduction -- Disability in the Global South and Sri Lanka -- Disability and Gender in Sri Lanka -- Theoretical Framework -- Methods -- Data Collection -- Data Analysis -- Findings -- Don't Go Outside: Hidden from Childhood -- "Who Will Take Care of You?" The Dangerous Path of Love and Marriage -- Being Disabled in Public: Consequences and Shared Barriers -- Discussion and Conclusion -- Notes -- References -- Chapter 3 Test Anxiety: Participation and Exclusion beyond the Institution -- Introduction -- Applying the Disability Paradigm to Test Anxiety among College Students; Increasing Environmental Demands: The Culture of High Stakes Testing in the United States -- Methods -- Results and Analysis -- Reflexive Narrative Analysis: The Cultural-cognitive Interactions of Test Anxiety -- Reflexive Cultural and Personal Narratives: The High Stakes of Higher Education -- Consequences of Test Anxiety: Insults to the Self and Social Relationships -- "College is Supposed to be Harder": Internalizing Cultural Scripts of Higher Education -- Organizational Missteps -- Discussion -- Limitations -- Notes -- References -- Chapter 4 Narratives of Care and Citizenship: Mothering "Precariously Normal" Adult Sons and Daughters in an Age of Inequality -- Methods -- Background -- Private and Public Dependency -- Independence and Overcoming -- Isolation and Concealment -- Conclusion -- Notes -- Acknowledgments -- References -- Chapter 5 "More than a Parent, You're a Caregiver": Narratives of Fatherhood in Families of Adult Sons and Daughters with L... -- Method -- Data -- Analysis -- Findings -- Plots and Characters -- The Good Father -- The Villains and Victims of the Story -- The Heroes of the Story -- Narrative Tensions -- Evoking Masculinity in the Context of Care Work -- Providing Financial Security in the Context of the High Cost of Disability -- Maximizing Potential in the Context of Realistic Expectations -- Protecting in the Context of Uncertainty and Helplessness -- Finding a New "Normal" in the Context of the Unexpected -- Discussion -- Notes -- Acknowledgments -- References -- Part II. Cultural Stories of Disability and Organizations -- Chapter 6 "You Won't Tell That You Have Schizophrenia, Right? You Should Say You Have a Small Depression": Organizational N... -- Introduction -- The French Context -- Formula Stories of Disability -- Methods -- Findings; Disability Managers as a Buffer Zone: Safe Spaces, Allies, and the Manufacture of Trust -- Conclusion -- Notes -- Acknowledgments -- References -- Chapter 7 "I Want to Go Places on My Own": A Case-study of Virginia Commonwealth University ACE-IT in College -- Introduction -- History of Intellectual and Developmental Disability in Education and Employment -- Biomedical Model as a Lens -- Cultural Narrative in Education -- Cultural Narrative in Employment -- Policy Changes and Changing Narratives -- Transition and Postsecondary Programs for Students with Intellectual Disabilities -- Methods -- Research Design -- Data Collection -- Data Analysis -- Results -- Discussion -- Exclusion -- Inclusion -- Exposure -- Limitations and Next Steps -- Conclusion and Implications -- Notes -- Acknowledgments -- References -- Chapter 8 More than Therapy: Conformity and Resistance in an Organizational Narrative of Disability and the Performing Arts -- Introduction -- Cultural Narratives of Disability -- Organizational Narratives of Disability -- Competing Understandings of Disability-centered Art -- Art Therapy -- Outsider Art -- Disability Aesthetic -- Research Methods -- Research Site -- Data Collection and Analysis -- Findings -- Myths, Misconceptions, and Stigma: Villains in the Quest for Accessible Art -- Who Was Victimized? -- And the Best Supporting Actress Goes to …: Working with Heroes towards a Common Goal -- Discussion -- Conclusion -- References -- Part III. Cultural Stories of Disability and Social Policies -- Chapter 9 Narrative Productions of Problems and People in the Americans with Disabilities Amendment Act -- Introduction -- Methodology -- Findings -- The Disability Discrimination Story -- The Moral Employer and Immoral Employee Story -- Discussion -- Notes -- References; Chapter 10 Institutional and Personal Narratives of Chronic Pain Management: Interrogating the Medical and Social Models of... -- Chronic Pain and Prescription Opioids -- Chronic Pain and the Models of Disability -- The Role of Narrative -- Institutional Narratives of Chronic Pain -- Method -- Findings -- The Dangers of Opioids Story -- The Benefits of Opioids Story -- Analysis -- Personal Narratives of Chronic Pain -- Method -- Findings -- The Impact of Pain -- Treatment Experiences -- Encounters with Stigma -- Barriers to Treatment -- Analysis -- Discussion -- Notes -- References -- Chapter 11 Stuck in Transition with You: Variable Pathways to In(ter)dependence for Emerging Adult Men with Mobility Impair... -- Introduction -- Life Course Theory, Emerging Adulthood, Interdependence, and Disability -- Emerging Adults with Disabilities -- Methods -- Data Collection -- Life Histories -- Ethnographic "Go-alongs" -- Data Analysis -- Sample Characteristics -- Findings -- Accessibility Expectations and Individual Adaptability: The Role of Family and Home -- Variable Meaning of Interdependence and Independent Living -- Discussion -- References -- Chapter 12 Conflicting Narratives of Corporeal Citizenship: Medicaid Personal Care Attendant (PCA) Policy and Program Users... -- Introduction -- Background -- Medicaid HCBS Users and Layers of Narrative Identity -- Methodology -- Institutional Narratives of Medicaid HCBS Users -- Personal Narratives of Medicaid HCBS/PCA Users -- Discussion -- Notes -- References -- Part IV. Cultural Stories of Disability and Resistance -- Chapter 13 Neither Victim nor Superhero: Reflections on Disability and Mental Health Counseling -- Introduction -- My Story -- Prologue -- Scene I: Yoda and My Entry into Counseling -- Scene II: Learning to Be Batman -- Scene III: First Impressions: Disability and the Job Interview; Scene IV: Bernard - Failed Relationship -- Scene V: Disability and Identity -- Scene VI: Disability and Therapeutic Relationships -- Scene VII: Counseling in a Closet -- Scene VIII: Jersey and Learning the Limits of Empathy -- Scene IX: Maggie and the Meaning of Being a Professional with a Disability -- Scene X: Matt and the Lesson of Authenticity -- Scene XI: Mandy and the Lesson of Disability as Counseling Resource -- Scene XII: Betting on the Long Shot -- Scene XIII: I Am Not a Superhero -- Afterthought -- Notes -- Acknowledgments -- References -- Chapter 14 Self-study of Intersectional and Emotional Narratives: Narrative Inquiry, Disability Studies in Education, and P... -- Introduction -- Our Conceptual, Emotional, Affective and Spiritual Framework -- Emotional, Affective, and Spiritual Paradigm -- Research Design and Methods -- Lisa: Changes and False Beliefs -- Mercedes: The Gift of Hope: Vocational and Academic Pathways -- DAVID: LETTING GO OF LEARNING DIS/ABILITY AT MY INTERSECTIONS OF PAIN THROUGH POEMS -- Laurie: Office Confidential -- Emily: When Paradigms Collide -- Concluding Remarks -- Notes -- References -- Chapter 15 Neoliberalism and the Fight for the Child: Narratives of Queer Mothering -- Methods -- The Heteronormative Future -- Mothering Queerly -- Conclusion -- Notes -- References -- Chapter 16 Sick and Tired: Narratives of Contested Illness in Chronic Fatigue Syndrome Blogs -- Methods -- Sample Demographics -- Analytic Strategy -- Data Analysis -- Findings -- Who Am I: Experiences of Narrative Wreckage -- Reasons for Illness -- Attempts and Challenges to the Restitution Narrative -- Resisting Medical Advice -- Attempts and Challenges of the Quest Narrative -- Learning Appreciation -- Challenges to Quest Narrative -- Discussion -- References; Chapter 17 "We Love Each Other into Meaning": Queer Disabled Tumblr Users Constructing Identity Narratives through Love and N2 - This volume seeks to answer the call for richer, more diverse understandings of disability through questions about narrative frameworks in disability research.Narrative is a omnipresent meaning-producing communication form in social life that is both cultural and personal UR - https://ebookcentral.proquest.com/lib/orpp/detail.action?docID=5975249 ER -