New Narratives of Disability : Constructions, Clashes, and Controversies.
- 1st ed.
- 1 online resource (303 pages)
- Research in Social Science and Disability Series ; v.11 .
- Research in Social Science and Disability Series .
Front Cover -- New Narratives of Disability: Constructions, Clashes, and Controversies -- Copyright Page -- Contents -- List of Tables -- About the Contributors -- Introduction Exploring Narrative as a Social Science Framework on Disability and Disabled People -- Notes -- Acknowledgments -- References -- Part I. Cultural Stories of Disability and Individual Lives -- Chapter 1 Reframing the Story of Helen Keller and Anne Sullivan: Resisting (Dis)ability Stereotypes through an Analysis of ... -- Introduction -- Deaf, Deaf-Blind, and Identities -- Narratives, (Dis)ability, and Interdependence -- Disability Studies Scholarship on Helen Keller -- Methodology -- Findings -- The Story of the Water Pump Moment: A One-sided Relationship of Helen and Anne -- Sullivan as "Miracle Worker" -- "That Day at the Water Pump Changed Helen's Life" -- Helen as "Miracle Child" -- "The Big Storm" -- The Complexities of Resistance -- Being "Trapped" by Her Disabilities -- Helen as a "Modern-day Saint" -- Interdependence - "You've Given Me a Marvelous Life" -- Conclusion -- Acknowledgments -- References -- Chapter 2 "It's Not That Way You Know, She Has a Good Future": Women's Experiences of Disability and Community-based Rehabi... -- Introduction -- Disability in the Global South and Sri Lanka -- Disability and Gender in Sri Lanka -- Theoretical Framework -- Methods -- Data Collection -- Data Analysis -- Findings -- Don't Go Outside: Hidden from Childhood -- "Who Will Take Care of You?" The Dangerous Path of Love and Marriage -- Being Disabled in Public: Consequences and Shared Barriers -- Discussion and Conclusion -- Notes -- References -- Chapter 3 Test Anxiety: Participation and Exclusion beyond the Institution -- Introduction -- Applying the Disability Paradigm to Test Anxiety among College Students. Increasing Environmental Demands: The Culture of High Stakes Testing in the United States -- Methods -- Results and Analysis -- Reflexive Narrative Analysis: The Cultural-cognitive Interactions of Test Anxiety -- Reflexive Cultural and Personal Narratives: The High Stakes of Higher Education -- Consequences of Test Anxiety: Insults to the Self and Social Relationships -- "College is Supposed to be Harder": Internalizing Cultural Scripts of Higher Education -- Organizational Missteps -- Discussion -- Limitations -- Notes -- References -- Chapter 4 Narratives of Care and Citizenship: Mothering "Precariously Normal" Adult Sons and Daughters in an Age of Inequality -- Methods -- Background -- Private and Public Dependency -- Independence and Overcoming -- Isolation and Concealment -- Conclusion -- Notes -- Acknowledgments -- References -- Chapter 5 "More than a Parent, You're a Caregiver": Narratives of Fatherhood in Families of Adult Sons and Daughters with L... -- Method -- Data -- Analysis -- Findings -- Plots and Characters -- The Good Father -- The Villains and Victims of the Story -- The Heroes of the Story -- Narrative Tensions -- Evoking Masculinity in the Context of Care Work -- Providing Financial Security in the Context of the High Cost of Disability -- Maximizing Potential in the Context of Realistic Expectations -- Protecting in the Context of Uncertainty and Helplessness -- Finding a New "Normal" in the Context of the Unexpected -- Discussion -- Notes -- Acknowledgments -- References -- Part II. Cultural Stories of Disability and Organizations -- Chapter 6 "You Won't Tell That You Have Schizophrenia, Right? You Should Say You Have a Small Depression": Organizational N... -- Introduction -- The French Context -- Formula Stories of Disability -- Methods -- Findings. Disability Managers as a Buffer Zone: Safe Spaces, Allies, and the Manufacture of Trust -- Conclusion -- Notes -- Acknowledgments -- References -- Chapter 7 "I Want to Go Places on My Own": A Case-study of Virginia Commonwealth University ACE-IT in College -- Introduction -- History of Intellectual and Developmental Disability in Education and Employment -- Biomedical Model as a Lens -- Cultural Narrative in Education -- Cultural Narrative in Employment -- Policy Changes and Changing Narratives -- Transition and Postsecondary Programs for Students with Intellectual Disabilities -- Methods -- Research Design -- Data Collection -- Data Analysis -- Results -- Discussion -- Exclusion -- Inclusion -- Exposure -- Limitations and Next Steps -- Conclusion and Implications -- Notes -- Acknowledgments -- References -- Chapter 8 More than Therapy: Conformity and Resistance in an Organizational Narrative of Disability and the Performing Arts -- Introduction -- Cultural Narratives of Disability -- Organizational Narratives of Disability -- Competing Understandings of Disability-centered Art -- Art Therapy -- Outsider Art -- Disability Aesthetic -- Research Methods -- Research Site -- Data Collection and Analysis -- Findings -- Myths, Misconceptions, and Stigma: Villains in the Quest for Accessible Art -- Who Was Victimized? -- And the Best Supporting Actress Goes to …: Working with Heroes towards a Common Goal -- Discussion -- Conclusion -- References -- Part III. Cultural Stories of Disability and Social Policies -- Chapter 9 Narrative Productions of Problems and People in the Americans with Disabilities Amendment Act -- Introduction -- Methodology -- Findings -- The Disability Discrimination Story -- The Moral Employer and Immoral Employee Story -- Discussion -- Notes -- References. Chapter 10 Institutional and Personal Narratives of Chronic Pain Management: Interrogating the Medical and Social Models of... -- Chronic Pain and Prescription Opioids -- Chronic Pain and the Models of Disability -- The Role of Narrative -- Institutional Narratives of Chronic Pain -- Method -- Findings -- The Dangers of Opioids Story -- The Benefits of Opioids Story -- Analysis -- Personal Narratives of Chronic Pain -- Method -- Findings -- The Impact of Pain -- Treatment Experiences -- Encounters with Stigma -- Barriers to Treatment -- Analysis -- Discussion -- Notes -- References -- Chapter 11 Stuck in Transition with You: Variable Pathways to In(ter)dependence for Emerging Adult Men with Mobility Impair... -- Introduction -- Life Course Theory, Emerging Adulthood, Interdependence, and Disability -- Emerging Adults with Disabilities -- Methods -- Data Collection -- Life Histories -- Ethnographic "Go-alongs" -- Data Analysis -- Sample Characteristics -- Findings -- Accessibility Expectations and Individual Adaptability: The Role of Family and Home -- Variable Meaning of Interdependence and Independent Living -- Discussion -- References -- Chapter 12 Conflicting Narratives of Corporeal Citizenship: Medicaid Personal Care Attendant (PCA) Policy and Program Users... -- Introduction -- Background -- Medicaid HCBS Users and Layers of Narrative Identity -- Methodology -- Institutional Narratives of Medicaid HCBS Users -- Personal Narratives of Medicaid HCBS/PCA Users -- Discussion -- Notes -- References -- Part IV. Cultural Stories of Disability and Resistance -- Chapter 13 Neither Victim nor Superhero: Reflections on Disability and Mental Health Counseling -- Introduction -- My Story -- Prologue -- Scene I: Yoda and My Entry into Counseling -- Scene II: Learning to Be Batman -- Scene III: First Impressions: Disability and the Job Interview. Scene IV: Bernard - Failed Relationship -- Scene V: Disability and Identity -- Scene VI: Disability and Therapeutic Relationships -- Scene VII: Counseling in a Closet -- Scene VIII: Jersey and Learning the Limits of Empathy -- Scene IX: Maggie and the Meaning of Being a Professional with a Disability -- Scene X: Matt and the Lesson of Authenticity -- Scene XI: Mandy and the Lesson of Disability as Counseling Resource -- Scene XII: Betting on the Long Shot -- Scene XIII: I Am Not a Superhero -- Afterthought -- Notes -- Acknowledgments -- References -- Chapter 14 Self-study of Intersectional and Emotional Narratives: Narrative Inquiry, Disability Studies in Education, and P... -- Introduction -- Our Conceptual, Emotional, Affective and Spiritual Framework -- Emotional, Affective, and Spiritual Paradigm -- Research Design and Methods -- Lisa: Changes and False Beliefs -- Mercedes: The Gift of Hope: Vocational and Academic Pathways -- DAVID: LETTING GO OF LEARNING DIS/ABILITY AT MY INTERSECTIONS OF PAIN THROUGH POEMS -- Laurie: Office Confidential -- Emily: When Paradigms Collide -- Concluding Remarks -- Notes -- References -- Chapter 15 Neoliberalism and the Fight for the Child: Narratives of Queer Mothering -- Methods -- The Heteronormative Future -- Mothering Queerly -- Conclusion -- Notes -- References -- Chapter 16 Sick and Tired: Narratives of Contested Illness in Chronic Fatigue Syndrome Blogs -- Methods -- Sample Demographics -- Analytic Strategy -- Data Analysis -- Findings -- Who Am I: Experiences of Narrative Wreckage -- Reasons for Illness -- Attempts and Challenges to the Restitution Narrative -- Resisting Medical Advice -- Attempts and Challenges of the Quest Narrative -- Learning Appreciation -- Challenges to Quest Narrative -- Discussion -- References. Chapter 17 "We Love Each Other into Meaning": Queer Disabled Tumblr Users Constructing Identity Narratives through Love and.
This volume seeks to answer the call for richer, more diverse understandings of disability through questions about narrative frameworks in disability research.Narrative is a omnipresent meaning-producing communication form in social life that is both cultural and personal.