The PKU Paradox : A Short History of a Genetic Disease.
Material type:
- text
- computer
- online resource
- 9781421411323
- 616.3/99
- RC632.H87 P38 2013
Cover -- Contents -- Foreword -- Preface -- List of Abbreviations -- Introduction. Pearl Buck, PKU, and Mental Retardation -- Chapter 1. The Discovery of PKU as a Metabolic Disorder -- Chapter 2. PKU as a Form of Cognitive Impairment -- Chapter 3. Testing and Treating Newborns, 1950-1962 -- Chapter 4. The Campaign for Mandatory Testing -- Chapter 5. Sources of Skepticism -- Chapter 6. New Paradigms for PKU -- Chapter 7. Living with PKU -- Chapter 8. The Perplexing Problem of Maternal PKU -- Chapter 9. Who Should Procreate? Perspectives on Reproductive Choice and Responsibility in Postwar America -- Chapter 10. Newborn Screening Expands -- Epilogue. "The Government Has Your Baby's DNA": Contesting the Storage and Secondary Use of Residual Dried Blood Spots -- Acknowledgments -- A Note on Sources -- Notes -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- Q -- R -- S -- T -- U -- V -- W.
The questions it raises touch on ongoing controversies about newborn screening and what happens to blood samples collected at birth.
Description based on publisher supplied metadata and other sources.
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2024. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
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