Care of Adults with Chronic Childhood Conditions : A Practical Guide.
Pilapil, Mariecel.
Care of Adults with Chronic Childhood Conditions : A Practical Guide. - 1st ed. - 1 online resource (436 pages)
Intro -- Preface -- Acknowledgments -- Contents -- Editors and Contributors -- Contributors -- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- 1 Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- Defining Pediatric to Adult Transition -- Transition Landscape -- United States: National Transition Context -- Affordable Care Act -- Healthy People 2020 and Title V National Performance Goals -- Medical Home Certification Standards and Electronic Health Records Meaningful Use Standards -- Youth in Transition -- Who Are They? -- What is Their Experience? -- Provider Transition Barriers -- Transition Models/Approaches and Professional Recommendations -- Transition Models/Approaches -- United Kingdom and American Professional Organizations Recommendations -- Starting a Transition Improvement Process and Measuring Impacts -- Starting a Transition Improvement Process -- Measurement Options for Assessing Quality, Experience, and Costs -- United States Training Competencies Related to Transition -- Payment for Transition Services Within the United States Health Care System -- Improvements in Coding and Reimbursement -- Infrastructure Funding -- Conclusion -- References -- Care of the Emerging Adult -- 2 Care of the Emerging Adult -- Introduction -- Emerging Adulthood -- How HEADDSS Impacts Prevention -- Preconception Counseling and the Emerging Adult -- Mental Health and Substance Use in the Emerging Adult -- A Paradigm Shift for Approaching the Emerging Adult/Young Adult Preventive Visit -- Emerging Adults with Chronic Childhood-Onset Conditions -- Patient-Centered Medical Home -- Chronic Care Model and Other Models of Chronic Disease Care -- Steps for Caring for Adults with Chronic Childhood-Onset Conditions -- Step 1: Health Care Policy Statement. Step 2: Tracking and Monitoring: Utilizing Clinical Information Systems -- Step 3: Transition Readiness Assessment and Goal-Setting -- Step 4: Written Health Care Plan -- Creation of Health Care Team -- Insurance -- Guardianship -- Culturally and Religiously Appropriate -- Update Process -- Step 5: Transfer of Care -- Step 6: Team-Based Care -- Step 7: Care Coordination -- Step 8: Address the Social Determinants of Health -- Step 9: Self-Management Support -- Step 10: Population Health Management & -- Continuous Improvement -- Conclusion -- Appendix -- References -- Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition -- 3 Attention-Deficit/Hyperactivity Disorder (ADHD) -- Case Presentation -- Case Discussion -- Definition -- Epidemiology -- Factors to Consider in Making a Diagnosis in Adults -- Risk Factors -- Pathophysiology -- Associated Conditions -- Special Issues in Transition to Adulthood -- Treatment, Monitoring, and Side Effects -- Workplace Accommodations -- Conclusion -- Additional Considerations -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- References -- 4 Autism -- Case Presentation -- Case Discussion -- Medical Model Versus Social Model of Disability -- Background -- Definition -- Prevalence -- Etiology and Risk Factors -- Associated Morbidity -- Genetics and Cancer Screening -- Seizure Disorder -- Gastrointestinal Disorder -- Sleep Disturbances -- Mental Health Conditions -- Special Issues that Arise in the Transition to Adulthood -- Interventions and Treatment -- Applied Behavioral Analysis -- Cognitive Behavioral Therapy -- Speech and Language Therapy -- Occupational Therapy -- Practical Tips to Facilitate Health Care -- Communication and Interaction -- Sensory Challenges -- Planning and Organizing -- Exams and Procedures -- Conclusion -- Appendix -- References. 5 Cerebral Palsy -- Case Presentation -- Case Discussion -- Definition -- Prevalence -- Pathophysiology -- Clinical Presentation -- Quality of Life -- Transition Issues -- Medical Issues of CP Patients -- Neuromuscular Function Issues -- Orthopedic Issues -- Osteopenia -- Pain -- Gastrointestinal Issues -- Immobility-Related Issues -- Urinary Dysfunction and Urinary Tract Infections -- Skin Breakdown and Infections -- Obesity and Cardiometabolic Risk -- Vision, Hearing, and Communication -- Psychosocial and Mental Health Issues -- Reproductive Health and Sexuality -- Conclusion -- Overview and Recommendations for Practice -- Appendix -- Resources for Family with Cerebral Palsy -- Suggested Reading -- References -- 6 Childhood and Adolescent Cancer Survivors -- Case Presentation -- Case Discussion -- Risk and Surveillance for Recurrence of Primary Cancer -- Management and Surveillance for Late Effects of Therapy -- Psychosocial Concerns -- Health Promotion -- Overview -- Definition and Epidemiology of Childhood Cancers -- Pathophysiology of Chronic Conditions Among Cancer Survivors -- Common Chronic Adult Conditions in this Population -- Endocrine Concerns -- Cardiovascular Concerns -- Pulmonary Disease -- Neurocognitive Issues -- Secondary Malignancies -- Genetic Considerations -- Special Issues in Adolescent and Young Adult Transition -- Access to Care -- Fertility -- Psychosocial Considerations -- Conclusion -- Appendix -- References -- 7 Congenital Heart Disease -- Case Presentations -- Case Discussions -- Definition and pathophysiology -- Epidemiology -- Common Adult Conditions in This Population -- Screening, Diagnosis, and Management of Cardiovascular Risk Factors -- Hypertension -- Diabetes Mellitus -- Hyperlipidemia -- Perioperative Management for Non-cardiac Surgeries in Adults with Congenital Heart Disease. Physical Activity and Employment -- Sexual and Reproductive Health -- Contraceptive Counseling -- Management of Perimenopausal Symptoms -- Sexual Dysfunction -- Genetic Screening -- Infective Endocarditis Prophylaxis -- Conclusion -- Appendix -- General Resources -- Clinical Guidelines and Scientific Statements -- Genetic Resources -- Patient Resources -- References -- 8 Cystic Fibrosis -- Case Presentation -- Case Discussion -- Definition, Epidemiology, and Natural History of Cystic Fibrosis -- Medical and Mental Health Assessment -- Care of Cystic Fibrosis and Associated Medical Conditions -- Overview -- Respiratory System -- Gastrointestinal System -- Endocrine System -- Acute Care -- Transplant Evaluation -- Primary and Preventive Care -- Substance Abuse -- Medication Management -- Reproductive Health -- Palliative Care -- Coordinated Care with Cystic Fibrosis Specialists -- Bronchiectasis -- Hemoptysis -- Pneumothorax -- Transition Care Management of Cystic Fibrosis Patients -- Conclusion -- Appendix -- References -- 9 Diabetes Mellitus (Type 1) -- Case Presentation -- Case Discussion -- Definition and Pathophysiology -- Epidemiology -- Common Adult Conditions in Patients with Type 1 Diabetes -- Mood Disorders -- Overweight and Obesity -- Thyroid Disease -- Celiac Disease -- Complications of Diabetes -- Disordered Eating -- Special Issues that Arise with Transition to Adulthood -- Alcohol, Tobacco, and Illicit Drug Use -- Sexual Health, Contraception, and Preconception Planning -- Americans with Disabilities Act and School/Work Accommodations -- Financial Issues -- Changing Living Situations -- Family-Oriented Care to Self-Care Behaviors and Adherence -- Conclusion -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- References -- 10 Down Syndrome -- Case Presentations -- Case Discussion -- Decline in Skills in Down Syndrome. Background: Definition and Epidemiology -- Special Issues in the Care of the Adult with Down Syndrome -- Additional Neurologic and Behavioral Issues -- Cardiology -- Pulmonology -- Gastroenterology -- Endocrinology -- Musculoskeletal -- Reproductive Health -- Visual and Hearing Issues -- Hematology-Oncology -- Conclusion -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- Medical Providers -- References -- 11 Human Immunodeficiency Virus (HIV) -- Case Presentation -- Case Discussion -- Preconception Counseling in HIV-Infected Women -- Prevention of Maternal-to-Child Transmission of HIV -- Prevention of Horizontal Transmission of HIV in Serodiscordant Couples -- Chronic Medical Conditions in Women with HIV Infection -- Pathophysiology of HIV and Its Effects on Immunity -- Epidemiology of HIV Infection in U.S. Young Adults -- Characteristics of Perinatally Versus Behaviorally Infected Youth and Young Adults -- Special Populations -- Young MSM of Color -- African-American Women -- Socioeconomically Disadvantaged Youth -- Common Comorbidities in HIV-Infected Adolescents -- Sexually Transmitted Infections -- Mental Illness and Substance Abuse -- HIV-Associated Neurocognitive Conditions -- Metabolic Disease in HIV Infection -- Special Topics in Youth and Young Adults Living with HIV Infections -- Reproductive Health in Young Women Living with HIV -- Retention in Care for Youth with HIV -- Immunization Needs of Young Adults with HIV -- HPV-Related Cancer Screening -- Non-HPV-Related Cancer Screening -- HIV Primary Care Screening -- Conclusion -- Appendix -- References -- 12 Inflammatory Bowel Disease -- Case Presentation -- Case Discussion -- Overview -- Epidemiology -- Pathophysiology -- Clinical Definition, Presentation, and Natural History of IBD -- Ulcerative Colitis -- Crohn's Disease -- Risk Factors -- Microbial Exposure. Immunoregulatory Defects.
9783319438276
Emergency medicine.
Electronic books.
R729.5.G4
616.044
Care of Adults with Chronic Childhood Conditions : A Practical Guide. - 1st ed. - 1 online resource (436 pages)
Intro -- Preface -- Acknowledgments -- Contents -- Editors and Contributors -- Contributors -- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- 1 Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- Defining Pediatric to Adult Transition -- Transition Landscape -- United States: National Transition Context -- Affordable Care Act -- Healthy People 2020 and Title V National Performance Goals -- Medical Home Certification Standards and Electronic Health Records Meaningful Use Standards -- Youth in Transition -- Who Are They? -- What is Their Experience? -- Provider Transition Barriers -- Transition Models/Approaches and Professional Recommendations -- Transition Models/Approaches -- United Kingdom and American Professional Organizations Recommendations -- Starting a Transition Improvement Process and Measuring Impacts -- Starting a Transition Improvement Process -- Measurement Options for Assessing Quality, Experience, and Costs -- United States Training Competencies Related to Transition -- Payment for Transition Services Within the United States Health Care System -- Improvements in Coding and Reimbursement -- Infrastructure Funding -- Conclusion -- References -- Care of the Emerging Adult -- 2 Care of the Emerging Adult -- Introduction -- Emerging Adulthood -- How HEADDSS Impacts Prevention -- Preconception Counseling and the Emerging Adult -- Mental Health and Substance Use in the Emerging Adult -- A Paradigm Shift for Approaching the Emerging Adult/Young Adult Preventive Visit -- Emerging Adults with Chronic Childhood-Onset Conditions -- Patient-Centered Medical Home -- Chronic Care Model and Other Models of Chronic Disease Care -- Steps for Caring for Adults with Chronic Childhood-Onset Conditions -- Step 1: Health Care Policy Statement. Step 2: Tracking and Monitoring: Utilizing Clinical Information Systems -- Step 3: Transition Readiness Assessment and Goal-Setting -- Step 4: Written Health Care Plan -- Creation of Health Care Team -- Insurance -- Guardianship -- Culturally and Religiously Appropriate -- Update Process -- Step 5: Transfer of Care -- Step 6: Team-Based Care -- Step 7: Care Coordination -- Step 8: Address the Social Determinants of Health -- Step 9: Self-Management Support -- Step 10: Population Health Management & -- Continuous Improvement -- Conclusion -- Appendix -- References -- Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition -- 3 Attention-Deficit/Hyperactivity Disorder (ADHD) -- Case Presentation -- Case Discussion -- Definition -- Epidemiology -- Factors to Consider in Making a Diagnosis in Adults -- Risk Factors -- Pathophysiology -- Associated Conditions -- Special Issues in Transition to Adulthood -- Treatment, Monitoring, and Side Effects -- Workplace Accommodations -- Conclusion -- Additional Considerations -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- References -- 4 Autism -- Case Presentation -- Case Discussion -- Medical Model Versus Social Model of Disability -- Background -- Definition -- Prevalence -- Etiology and Risk Factors -- Associated Morbidity -- Genetics and Cancer Screening -- Seizure Disorder -- Gastrointestinal Disorder -- Sleep Disturbances -- Mental Health Conditions -- Special Issues that Arise in the Transition to Adulthood -- Interventions and Treatment -- Applied Behavioral Analysis -- Cognitive Behavioral Therapy -- Speech and Language Therapy -- Occupational Therapy -- Practical Tips to Facilitate Health Care -- Communication and Interaction -- Sensory Challenges -- Planning and Organizing -- Exams and Procedures -- Conclusion -- Appendix -- References. 5 Cerebral Palsy -- Case Presentation -- Case Discussion -- Definition -- Prevalence -- Pathophysiology -- Clinical Presentation -- Quality of Life -- Transition Issues -- Medical Issues of CP Patients -- Neuromuscular Function Issues -- Orthopedic Issues -- Osteopenia -- Pain -- Gastrointestinal Issues -- Immobility-Related Issues -- Urinary Dysfunction and Urinary Tract Infections -- Skin Breakdown and Infections -- Obesity and Cardiometabolic Risk -- Vision, Hearing, and Communication -- Psychosocial and Mental Health Issues -- Reproductive Health and Sexuality -- Conclusion -- Overview and Recommendations for Practice -- Appendix -- Resources for Family with Cerebral Palsy -- Suggested Reading -- References -- 6 Childhood and Adolescent Cancer Survivors -- Case Presentation -- Case Discussion -- Risk and Surveillance for Recurrence of Primary Cancer -- Management and Surveillance for Late Effects of Therapy -- Psychosocial Concerns -- Health Promotion -- Overview -- Definition and Epidemiology of Childhood Cancers -- Pathophysiology of Chronic Conditions Among Cancer Survivors -- Common Chronic Adult Conditions in this Population -- Endocrine Concerns -- Cardiovascular Concerns -- Pulmonary Disease -- Neurocognitive Issues -- Secondary Malignancies -- Genetic Considerations -- Special Issues in Adolescent and Young Adult Transition -- Access to Care -- Fertility -- Psychosocial Considerations -- Conclusion -- Appendix -- References -- 7 Congenital Heart Disease -- Case Presentations -- Case Discussions -- Definition and pathophysiology -- Epidemiology -- Common Adult Conditions in This Population -- Screening, Diagnosis, and Management of Cardiovascular Risk Factors -- Hypertension -- Diabetes Mellitus -- Hyperlipidemia -- Perioperative Management for Non-cardiac Surgeries in Adults with Congenital Heart Disease. Physical Activity and Employment -- Sexual and Reproductive Health -- Contraceptive Counseling -- Management of Perimenopausal Symptoms -- Sexual Dysfunction -- Genetic Screening -- Infective Endocarditis Prophylaxis -- Conclusion -- Appendix -- General Resources -- Clinical Guidelines and Scientific Statements -- Genetic Resources -- Patient Resources -- References -- 8 Cystic Fibrosis -- Case Presentation -- Case Discussion -- Definition, Epidemiology, and Natural History of Cystic Fibrosis -- Medical and Mental Health Assessment -- Care of Cystic Fibrosis and Associated Medical Conditions -- Overview -- Respiratory System -- Gastrointestinal System -- Endocrine System -- Acute Care -- Transplant Evaluation -- Primary and Preventive Care -- Substance Abuse -- Medication Management -- Reproductive Health -- Palliative Care -- Coordinated Care with Cystic Fibrosis Specialists -- Bronchiectasis -- Hemoptysis -- Pneumothorax -- Transition Care Management of Cystic Fibrosis Patients -- Conclusion -- Appendix -- References -- 9 Diabetes Mellitus (Type 1) -- Case Presentation -- Case Discussion -- Definition and Pathophysiology -- Epidemiology -- Common Adult Conditions in Patients with Type 1 Diabetes -- Mood Disorders -- Overweight and Obesity -- Thyroid Disease -- Celiac Disease -- Complications of Diabetes -- Disordered Eating -- Special Issues that Arise with Transition to Adulthood -- Alcohol, Tobacco, and Illicit Drug Use -- Sexual Health, Contraception, and Preconception Planning -- Americans with Disabilities Act and School/Work Accommodations -- Financial Issues -- Changing Living Situations -- Family-Oriented Care to Self-Care Behaviors and Adherence -- Conclusion -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- References -- 10 Down Syndrome -- Case Presentations -- Case Discussion -- Decline in Skills in Down Syndrome. Background: Definition and Epidemiology -- Special Issues in the Care of the Adult with Down Syndrome -- Additional Neurologic and Behavioral Issues -- Cardiology -- Pulmonology -- Gastroenterology -- Endocrinology -- Musculoskeletal -- Reproductive Health -- Visual and Hearing Issues -- Hematology-Oncology -- Conclusion -- Appendix -- Suggested Reading List -- Patient/Caregiver Resources -- Medical Providers -- References -- 11 Human Immunodeficiency Virus (HIV) -- Case Presentation -- Case Discussion -- Preconception Counseling in HIV-Infected Women -- Prevention of Maternal-to-Child Transmission of HIV -- Prevention of Horizontal Transmission of HIV in Serodiscordant Couples -- Chronic Medical Conditions in Women with HIV Infection -- Pathophysiology of HIV and Its Effects on Immunity -- Epidemiology of HIV Infection in U.S. Young Adults -- Characteristics of Perinatally Versus Behaviorally Infected Youth and Young Adults -- Special Populations -- Young MSM of Color -- African-American Women -- Socioeconomically Disadvantaged Youth -- Common Comorbidities in HIV-Infected Adolescents -- Sexually Transmitted Infections -- Mental Illness and Substance Abuse -- HIV-Associated Neurocognitive Conditions -- Metabolic Disease in HIV Infection -- Special Topics in Youth and Young Adults Living with HIV Infections -- Reproductive Health in Young Women Living with HIV -- Retention in Care for Youth with HIV -- Immunization Needs of Young Adults with HIV -- HPV-Related Cancer Screening -- Non-HPV-Related Cancer Screening -- HIV Primary Care Screening -- Conclusion -- Appendix -- References -- 12 Inflammatory Bowel Disease -- Case Presentation -- Case Discussion -- Overview -- Epidemiology -- Pathophysiology -- Clinical Definition, Presentation, and Natural History of IBD -- Ulcerative Colitis -- Crohn's Disease -- Risk Factors -- Microbial Exposure. Immunoregulatory Defects.
9783319438276
Emergency medicine.
Electronic books.
R729.5.G4
616.044